![]() Many days it’s just too exhausting or painful to walk down to the lunch room/break room. Let’s say you make it to work (because you’re one of the ones that can still work and not one of the many who are too ill to hold down full time employment). There’s a sadness and loneliness that comes with chronic illnesses like lupus and fibromyalgia. And on Wednesday we wear pink (no wait - that’s “Mean Girls” - but I digress) Advertisement ![]() If you’re one of the ones who is still well enough to be able to hold down a job you make your way there, wishing you had the “sick time” to take off but knowing that one cold that turns into bronchitis then pneumonia can mean a week in the hospital then at least a month or two home recovering so you can’t stay home just because every fiber of your being hurts and you feel like you haven’t slept for a week. ![]() You can feel super nauseated but you have to eat something because there is that handful of pills waiting for you to ingest and you’ll only feel worse (or get really sick) if you don’t take them. Zippers, buttons, necklaces, bracelets - forget it if your fine motor coordination isn’t working. Just the feeling of the fabric touching skin can be so painful that it limits what you can and can’t wear. Putting on clothing can be a two-person job - that’s if you can get out of bed. You are too tired and sore to even shower, yet can’t stand the fact that you aren’t clean. When you live with chronic illnesses like fibromyalgia and lupus there are many, many days where this is a perfect sentence to describe your feelings. ![]()
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